Heroes In The Hall

October 18, 2012

(I first posted this on Sarah’s cancer site in October 2002, five months after her diagnosis. Whenever fall comes around, my mind always goes back to this story–a story that reinspires me and recharges me with thanksgiving every time I read it.)
 
Heroes In The Hall

Last week, the staff where our daughter receives her cancer treatment put together a little Halloween outing for its young patients. In preparation for this big event, Sarah donned a huge smile and a Sponge Bob outfit.  She added a pink wig to her ensemble but after a few minutes decided she didn’t like it after all, since it clashed with the Sponge Bob yellow. Girlfriend is all about her hospital/Halloween ensembles matching.

She cheerily took off down the hall with her cancer cronies, swinging her orange bucket with great enthusiasm. There were only a few kids well enough to participate but they all seemed determined to have as much fun as a hospitalized child possibly can, as another autumn day of their childhood disappears forever outside the window.

Since the children were accompanied by various poles, medical personnel, and hovering parents, our collective pace was snail-slow as we moved toward the first nursing station. I was glad for the leisurely pace though because it gave me a chance to walk on ahead of the group and snap a few pictures. Up until that point I had only seen the gathering from the inside but when I turned around and caught a glimpse of the group as a whole, I had to wipe away unexpected tears.

I saw a bald 3-year old ballerina who in a few hours, would be violently throwing up as her fifth round of chemo began. I saw a small boy in a wagon, too weak to walk but jauntily sporting an orange scarecrow wig.  I saw a worn-out mom held tightly to the hand of a daughter she may never get to see grow into womanhood.

There were small kids hooked up to tall poles and tiny trick-or-treaters pulling oxygen carts. There were children who could barely walk and kids with enough suffering written on their faces to last a lifetime. There were also compassionate, gifted nurses who willingly risk having their hearts broken every time they come to work. 

In short, when I turned around, I saw a hall full of heroes.

Although each hero’s face told a different story, I still noticed many things they had in common. I glimpsed courage and humor despite childish grief over childhoods lost. I saw smiles behind suffering and excitement behind eyes that had seen too much.

And smack dab in the middle of it all, I saw a certain bald Sponge Bob, her pale face covered with a yellow hospital mask, her wise and weary eyes appearing above the rim.

But this was not just any Sponge Bob, mind you. This was the Sponge Bob of my heart, perfectly at rest in the halls of suffering, perfectly at home inside her own ailing skin, perfectly at peace with the simple joy of holding up an orange bucket and a smile to a nurse and receiving a treat in exchange.

When I finished my photos and stepped back into the group, I took Sponge Bob’s hand as we walked, so thankful for the simple joy of just being with her.

After about ten more minutes of walking, Sarah’s small voice piped up from behind her mask. “Mommy, my steam just ran out.”

I said, “That’s okay, Sarah. I’ll just pick you up and carry you.”

And Sarah and I continued on with our stalwart companions on our journey through the hospital, on our journey through the valley of the shadow of death.

Some members from our little group will come out whole on the other side of the valley; others will travel on to a place where there are no tears, no cancer, no bald children, no death, and no sounds of small hearts breaking. The only sound heard in that place will be the music of children’s voices laughing and the glory of children’s voices singing.

And as for Sarah? We don’t know how much time she has. Maybe just months. Maybe a few years.  

But at some point in the (hopefully far away) future, Sarah “Sponge Bob” Smith will look trustingly into the face of heaven and say, “God, my steam just ran out!”

And He’ll say, “That’s okay, Sarah. I’ll just pick you up and carry you.”

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9 comments so far.

9 responses to “Heroes In The Hall”

  1. Lisa from Georgia says:

    I feel like I just picked up crying where I left off 10 years ago when I first read this story. Today though my tears are mixed with joy…joy for 10 years!! Some sadness for all the children, including my own, who did not make it…but more joy today…yes joy and a cyber high-five to Sarah!

  2. Mrs. Pam says:

    made me cry again!

    2nd attempt to leave a message… another “invalid security message” when I tried.
    also, I’m still not getting an e-mail for your new posts, and I have checked the Notify Box. Can you remedy this?
    (I will copy this message before I attempt to send it, just to be safe.)

    • Becky says:

      Mrs. Pam, I am so sorry you are having those technical difficulties and I don’t know what to tell you to. I did post your problems on a blog forum that I’m a part of to see if anyone else has dealt with that sort of thing and if they have any advice or solutions. In the meantime, you are wise to copy your messages before you try to post them.

  3. This post brought me to tears years ago and did the same today. Sarah’s simple yet so eloquent statement, “my steam just ran out”, hits so directly…then and now.

  4. Mary H says:

    I was not with you at this time in Sarah’s journey but I so remember this post – it didn’t matter that I had read it before, I read it again and I weeped again – for those children that did not win this fight and I wept in joy for one specific, special young woman who did. Thank you, Becky, for posting these stories of Sarah for all of us to re-read and remember or for those first reading them, to understand the triumph of God, the doctors, you, Steve, Nathan, Snowy and most of all, Sarah.

    Sarah had the best way of expressing herself then, as she does now – “running out of steam” and your prayer to God truly is something I will always remember.

  5. Margie says:

    Oh my, how I remember those days:{ It still brings tears to my eyes. I don’t think your writing has ever been more heartfelt. Hopefully, you will never get to that point ever again. My prayers continue for Sarah and all the other children that should never have to know the things they were never meant to know.

    • Becky says:

      Margie, yes, my prayer as well is that we never have to walk that road again. So many children affected by this terrible disease–how thankful we are for Sarah’s health and how sad for those children who didn’t make it.

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